Updated: Aug 31, 2021
Rosie Ashcraft in happier times with her kids (all photos: Rosie Ashcraft)
By Spencer van Vloten
August 30th, 2021
In the first entry of 2-part series highlighting the systemic barriers that persons with rare disorders face, we meet 35-year-old Rosie Ashcraft.
When Rosie was at her weakest and most vulnerable, she looked to BC's health care system for support, but the response she got would send her into a downward spiral of depression and desperation.
Victoria's Scarlit-Rose Ashcraft, better known to friends and family as Rosie, had big dreams.
Gifted with versatile creative flair, she wrote poetry, performed in theatre and dance, and recorded an indie synthpop album -Dreamer Queen Not Under the Machine - that received critical acclaim.
Having overcome a difficult childhood in which she was bullied due to her Asperger's, Rosie was determined to make up for lost time and enjoy her young adulthood, making an effort to focus on self-care and pursuing her artistic goals.
Rosie with husband Nelson and their boys, before her symptoms grew unmanageable
She also had a loving family, consisting of husband Nelson and their 2 boys, all of whom supported her in her creative journey and provided extra sunshine in her life.
All told, things were going pretty well for Rosie, but she would soon go through major changes.
In her mid-20s Rosie started noticing changes to her body, ones that just didn’t seem right for someone her age.